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Latest News about rare disease patient registries

Recent news which mentions rare disease patient registries

Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
Tickers RWD RWE
Tags patient advocacy Healthcare rare disease platform
From PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
Tickers RWD RWE
Tags PGHD Centralized Platform Real World Evidence
From PRUnderground
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